Today we’ve had the last visit at Kajetany, for final processor adjustments. It means that two years have passed since the activation of the second implant. This time all three of us paid a visit. We came as usual in the morning, registered in reception and were pointed to the implant department. It all started with follow-up visit to the ear doctor. Continue reading “21. THE LAST ADJUSTMENTS OF PROCESSORS”
In May 2016 our whole family participated in touring trip around Austria. It was organized by a cochlear implant producer, MED-EL company (Hela has their implants). Twenty people took part in this five-day trip, along with our MED-EL “guardians” – Kasia and Agnieszka. There were two implanted adults among us, along with five families with implanted kids, including Hela and us 🙂 We’ve traveled by bus, the journey was quite long, but we’ve spent our time together very positively, we got to know everybody. Continue reading “20. VISITING MED-EL HEADQUATER – AUSTRIA”
Hela is turning four in September. She’s developing really well, being happy and joyful kid. Those four years let us cope with her disability, this matter is very well known to us now. Continue reading “19. SWIMMING POOL – OUR WORRIES 2016-05-04”
Hela’s had hearing rehabilitation at Kajetany since she was four months old. We’ve systematically attended her classes. I was willing to use the rehabilitation holidays back when Hela didn’t have her implants, but they kept telling me it was too early for her, the child needs to have an implant for some time before going on such trip. Continue reading “18. KAJETANT’S REHABILITATION CAMP IN ŁEBA (APRIL 2016)”
Today me and Dominik have participated in all-day Med-El training which took place in company’s offices on Rumiana street. The subject was “The latest medical, technological and therapeutic achievements that allow true equalization of opportunities for hearing impaired children in universal education”. Continue reading “17. MED-EL TRAINING”
The doctor told me quite recently that in the case of ear infection you can’t travel by plane – that was a first time I’ve ever heard such thing, but it seems logical that something may for example happen during the change in the pressure. I had a rehabilitation scheduled at Kajetany, so I’ve met their doctor (It had to be a private visit – no chance to get the appointment with the state doctor). Hela had healthy ears, so everything seemed very optimistic.
I’d also like to mention that I’ve informed the traveling agency before the flight that we would fly with handicapped child who has cochlear implants. Our plane departed at noon, it was just right time for traveling with kids. At the airport, during the check-in, while passing through the metal detector, we kept informing the staff that Hela has implants and she shouldn’t use the gate. Airport employees were very nice all the time, so we didn’t have any problem with letting Hela walk around the sensors. The flight to Mexico lasted 13 hours, I was afraid of such long time, but everything went smoothly, without problems. Hela doesn’t feel any discomfort in planes and is very talkative. We’ve checked the noise level with an app and the result was about 80 decibels, so after few hours the sound of engines became a nuisance.
In Poland it’s the middle of the winter and here we suddenly fell into the middle of the summer – the feeling is incredible! Way to “recharge my batteries” and find contemporary respite from the clamor of fast-paced world. I have an impression that time is passing faster and faster, but trips like this let us slow down for a moment and just be together as a family. Those moments strengthen us and – above all else – our children as well.
We’ve taken the newest Med-el swimming pouches, but we didn’t use them even once. Hela’s used to taking off her processors and running into water, with a smile on her face. On the other hand I was afraid to test the pouches there, if something had drenched it would have been a big problem, we can test them in Poland when it gets hotter. There was this one morning in the middle of the trip, when Hela woke up and put on both processors and cried that the batteries need to be replaced. We replaced them and one processor was still malfunctioning. We’ve tried to replace the wire with no positive result, this made us a little bit upset, but thankfully we had one spare coil – when we replaced it, Hela said “It’s working now”. We breathed a sigh of collective relief. I think that such emergency moments when devices break are permanent part of implanted people’s lives, but everyone hopes that such moments would seldom happen. I still do. Hela, despite having both implants and understanding everything on each one of them, wants to wear both and gets upset when one of them isn’t working.
We were in Mexico for 11 days, together with my sister, her husband, their son Felix and my mom. Sea, beach, swimming pool, aquapark, delicious food and 28 degrees in the shade…. I hope we’ll be able to go on a similar trip next year. We’ve travelled to the village nearby where we saw how Mexicans live, also visited crocodile, monkey and parrot park. In the evenings there were some performances held in the hotel, our children were very interested in them. Below our trip in a nutshell. Have a good time watching it 🙂
The beginning of winter felt more like a spring. Hela had a cold few times and I’ve noticed that in 50% of cases her illness was spreading into an ear inflammation. It’s highly worrying, because whenever it happens she always has to take antibiotics… Agata’s never had an ear inflammation, but it happens to Hela few times a year, usually during a cold. I begin to think it might have some connection with her surgeries or implants. Continue reading “15. WINTER OF 2016”
SEPTEMBER 22, 2015
Hela’s turned three. The time passes so quickly and I can tell it heals all wounds. Three years ago, when we found out about her hearing impairment, it was terrible news and the future appeared bleak. Today I can say without any hesitation that we’re very happy people. Continue reading “14. HELA IS 3 YEARS OLD, HAPPY BIRTHDAY!”
Hela likes to sing, it’s her main repertoire 🙂
Continue reading “12. SPRING OF 2015 – TURKEY”
Together with girls we’ve decided to go on a 5-day trip to the mountains, to Szczyrk. It was very intense and tiring at times, but the girls were thrilled. We had many events planned everyday, so those days were passing very quickly and were filled with many activities. We’ve borrowed special tent for Hela to enter, so we could wander around the mountains. Continue reading “13. MOUNTAIN TRIP”